CJ was released from the hospital late yesterday afternoon. He is very happy to be home! So are Greg and Sheree. Papaw Bob and I stopped by for a brief visit just to check in and see if anyone needed anything.
CJ's color looks pretty good, but he still has those dark circles around his little eyes. He was in good spirits and happy to be racing again on the Wii. (There was a Wii at the hospital but it didn't have his favorite Mario racing game.) He tires easily. After two rounds of racing he ate a little "hot cheese" (CJ's term for mac & cheese) then went to lie down and rest. Of course, he needed Mommy to lie down with him. He rarely lets Mommy out of his sight and I don't blame him.
Greg left to make the first trip to the pharmacy and returned with a grocery bag full of prescriptions. I can't imagine keeping up with this treatment regimen.
We don't yet have the results from yesterday's bone marrow and spinal tap. The doctors are still a little concerned about CJ's blood counts. The let him come home today without the test results, thinking he would be more comfortable there and he can forego the every 4-hour temp and bp checks. The doctors want to see him at the clinic tomorrow to check his blood levels again. We're hoping they will have the results of the bone marrow and spinal fluids by then.
We will keep everyone posted as things evolve. In the meantime, we want to thank everyone for their prayers, well-wishes, food and contributions. Your outpouring of love and their faith in God form the foundation that gives Greg and Sheree the strenghth to keep moving forward.
Just to fore warn you. Clinic visits take about 2 hours or more. Counts check days are a bit faster but not a ton. Unless on the off hand they are slow then only about an hour. (They are never slow.)
ReplyDeleteLove you guys
Kristen
PS. If you don't have a white wipey board in your house I recommend one. I wrote down all of ViviAnne's drugs with times and special instructions so in a rare case that I was not available someone else could administer the drugs. Plus it helped me memorize it. Just a little helpful tip.
Kristen,
ReplyDeleteYou and Brent have been a wonderful source of information, strenghth and inspiration for Greg and Sheree. Thank you for all you are doing!
Today was a visit to Kohl's for new boxers and shorts that fit. CJ is either growing or the steroids are starting to have an affect. Tomorrow - a white board!
We love you guys, think of you always and pray for you daily.
Love,
Kitty