Posted by: Mommy
We went to our monthly clinic visit on Tuesday this week. Everything went fine. CJ’s ANC is still at 1700, and all his other counts are good too. As long as his counts stay in this range they will not have to do anything extra or adjust any medicines during maintenance. We did have to go over to Kosair after the clinic appointment to get a sleepy test (spinal tap). These will happen every three months during maintenance to check to make sure no cancer cells go to the brain. They also give him chemo in the spine to replace the spinal fluid they take. CJ did as good as I have ever seen during the sleepy test. We did have some tears from nerves, but no fits. This is a step up from his norm. We did start steroids Tuesday, which is never fun, but last time was not bad at all, since CJ wasn’t stuck at home the entire time. We are all hoping that it goes as smooth this time around. Plus with all the holidays coming up we don’t have to go to clinic again until the beginning of January, Yeah!!
We had a very good Thanksgiving. CJ got to get out and take day trips to see most of his grandparents and great grandparents over a four-day stretch. He got to play with lots of cousins and had a good time; with lots of good food everywhere he went.
Everything has been going good, CJ is just his normal self anymore, except the fact his hair came in quite a bit lighter than before. That doesn’t bother him one bit. Just looking at him you would never think this is a kid with cancer. I thank God every day that CJ has done so well with his treatment. I also thank God for all the support all our family and friends have showed us through this year. Happy Holidays to everyone, and thank you for all you have done for our family.
