Posted by Mommy
Today was the first time in a month that we had chemo through CJ’s port. Not having anything done in a month I was hoping that CJ would take it well, with little kicking and screaming. We have had problems from the beginning with CJ getting his port accessed. When I see kids at the clinic kicking and screaming through everything it makes me remember our early days of taking four people to hold down this little sick boy to get his port accessed. You just wondered how this little weak child could keep four grown people from holding him still. How we dreaded every treatment because of the pain and stress that CJ was being put through. Today at clinic was a good day. CJ sat in the chair and got his port accessed and his chemo all by himself for the first time today. I feel that we have finally hit a milestone. I know being in maintenance itself is a big milestone in CJ’s treatment, but the fact that he didn’t kick or scream he just sat still and let the nurse do what she had to do. He wasn’t mad after it was over like our normal clinic visit. CJ has grown up so much in the last seven months it is hard to believe it is the same little boy, and that he is only four years old.
We got all good news at the clinic today. CJ’s ANC is 2000. At this time in his treatment that is a very good number. The doctors want to keep his ANC low enough that they know the chemo is working, but high enough that he won’t get sick at the drop of a hat. According to the doctors CJ looks great. He does have to start steroids today which we never like, but know it is a necessary evil. He also keeps up with his normal chemo pills nightly, and weekly. But the next trip to the clinic isn’t for 4 more weeks.
The last two weeks have also been good. CJ has been going to preschool three half days a week. He loves being back, and hasn’t had any problems with the time he has missed. Ever since CJ was a baby he has been a very smart little boy. He knew lots of things before most kids his age. He was speaking in complete sentences when most kids barely spoke a few words. Since we did do lots a school work while stuck at home he is right along with the rest of his class. I was a little worried about being on steroids and going to school, but it just worked out that chemo week is on CJ’s fall break. Everything else is going good.
