Posted by: Mommy
It has been a crazy month this last month. First we had CJ in the hospital because of fever right before Christmas. It didn’t take him long to get over that and we spent less than 24 hours in the hospital. Next, we had Christmas with everyone. Luckily CJ didn’t have to miss any of that. We had a good Christmas and New Year. CJ also had a Birthday and turned 6.
Next, CJ got another fever last week on Thursday night, and back to the hospital we went. CJ got two flu tests, one negative and one positive. They let us go home 13 hours after we arrived and then had to come back the next morning for another flu test. This test ended up being negative. But since he got a positive we had to go off the chemo pill he takes each night and take flu medicine. He is now off the flu medicine, but has to start back on his chemo pills gradually. That means we also have to go back to the doctor in two weeks to get his counts checked again.
Last, we did go to clinic today also. This is where we found out about the flu tests and chemo pill doses changing. Also his ANC is at 1100. This is on the low side, but still in the range they want to keep it in. CJ was very brave during chemo, we are very proud of him. After chemo we went to Kosair for his Spinal Tap. The only problem was the chemo floor 7 West the in-patient part was overflowing with patients, so they turned 7 East into an in-patient overflow area. That meant we had to go to the 8th floor to get the LP done. The nurses and staff at the 8th floor were not used to us who this is just routine, so it seemed we were telling them how to do things. This means it took a little longer than usual, but we got through it, and CJ is feeling good and in a good mood. We are hoping next month is less eventful.
