Posted by: Mommy
Today was the first day of the dreaded delayed intensification phase. I say dreaded because there are several different types of chemo, Peg shots, steroids, and spinal taps over the next two months. Some weeks we might have to go to the clinic up to four times. Sometimes the chemo will take over an hour not counting the clinic appointment that usually last around two hours without chemo. Plus being back on steroids we get to face the weight gain, mood swings, and 24 hour a day food cravings. Plus CJ has to learn to take pills, and will have to start taking one every night until the end of his treatment.
CJ had to have an ANC of 750 to even start this phase and he barely made it at 800. He did really well today until it was time to get his port accessed. He did better than usual but he still has problems getting it accessed. Then after the chemo we went to Kosair for a spinal tap, or sleepy test. CJ was so upset by the time he got his sleepy test that they had to sedate him before he was completely hooked up to all the machines. They have learned not to fight it, since he doesn’t have any problem with sedation and was fully checked out at the clinic a half hour earlier. He was in a much better mood when he woke up, and didn’t get sick at all unlike the last time he had a sleepy test.
We came home and CJ was hungry. It is not constant yet, but just give it a couple of days. We go back on Thursday this week for Peg shots, or bad pig shots. This is another thing CJ hates. Then back to the clinic next Monday for more chemo. It is going to be a hard couple of months, and with his counts as low as they have been it looks like we will still be home bound for awhile. We are just a week short of being stuck for two months straight, minus a couple of days in the middle, of being stuck at home. But to look on the bright side it is much better to be stuck at home than stuck in the hospital.
CJ is having his fundraiser at the end of this month at St. John’s Church. Anyone who can come we will really appreciate it. There is more info about the fundraiser on the side of the blog page.
OH hang in there. The next two months are bad, I'm not even going to sugar coat it but there is light at the end of the tunnel. Even though you will still be on the horrible ride of Cancer the day to day will get easier and his counts should stabilize over the 1,000 mark. Still praying and hoping to see you at the end of the next 2 months.
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