Week two, better than the last

Posted by Mommy

We made it through week two of this hard phase. The good news is this week was much better than the first. CJ’s mood, tiredness, and overall feeling bad left only a day and a half after being off the steroids. The chemo didn’t make him feel as bad this last week either. We got to get out of the house with his ANC up. We didn’t do a lot, but he did get to visit a few people that he hasn’t got to see in a while. Getting out of the house did put him in a good mood, and made him very talkative.

This week we started back up on the steroids for the next seven days. He also got the same chemo treatment that he has received the last two weeks. The bad part about this doctor visit was CJ’s ANC dropped all the way down to 600, which is barely enough to receive his chemo at all. The doctors say this is normal and means everything is working correctly. The combinations of being off the steroids for a week and the chemo made them drop. I asked if his counts would come back up this week being back on the steroids but it is a toss up. With three weeks in a row of this chemo treatment it usually makes his counts stay down for a while, that is why he doesn’t get any treatment next week, to let his counts come back up before the next round.

The next round will consists of chemo four days in a row, then off three days and chemo four more days in a row along with starting to take a chemo pill daily. Most kids get delayed at this point because their counts don’t come up within the two weeks, so to expect that.

Just a reminder that CJ’s fundraiser at St. John’s Church is this Friday starting at 5 pm; it will be a lot of fun and a nice night out with fun stuff for the entire family, so come and join us in supporting CJ. Thanks in advance for everyone who can come.