Posted by Mommy
We finished another very long week. We had a rough start at the clinic last week, but it did get better. We had daily chemo in the mornings at home on Wednesday, Thursday, and Friday. CJ had gotten used to the in home nurse, and would help her each morning, asking questions the entire time. CJ seemed to have lots of energy running around the house, but taking naps in the middle of the day, which is not usual. On Friday morning the nurse came for the daily chemo, and drew blood to test just to make sure CJ counts were not too low. The nurse took his “straw” out and we went on with our day. By 11am the clinic called and told us to go to the hospital because his hemoglobin levels were too low, and he had to get a blood transfusion.
At the hospital we didn’t even make it up to the 7th floor before the joy cart stopped us. CJ got to pick out a new toy to play with before we even registered. At the 7th floor we had a quick wait before we were in a room. CJ was in a good mood, playing with his new transformer, not to mention the new toy car from his Happy Meal we got on the way to the hospital. CJ did not want to get his straw put back in. Before the nurses had a chance the Joy cart stopped by the room. I let them know that we already had a turn in the elevator, but he insisted that CJ get something else also. So now we have three more cars. When it came time to access his port the fit started. We had to have two nurses come in plus me to hold him down to get it done. Then when it was over he was fighting mad. He refused to let the nurses do anything else, no blood pressures, and no temperatures, no anything. Shortly after the fighting fit, he calmed down and fell asleep. He slept for two hours before waking up to the nurse hooking up the blood to his straw. But he decided he was going to be good then, since I explained to him that bad boys don’t get to play with toys or get to watch TV only good boys do. After being good for a while and telling the nurses and me sorry for being bad the child life person came by with more toys. She brought a couple different things but he picked the sword. For the next four hours CJ got blood as we watched Scooby Doo over and over again. At 7:45pm the nurse came in and unhooked CJ for the second time for the day and we went home, eight hours after arriving.
Our weekend was quiet at home, with CJ telling us how he got super hero blood so now he is a super hero. He also told us and everyone who would listen that the nurse took his blood out Friday morning and she should have just left it in so he wouldn’t have had to go and get blood from the other doctor.
Today we went to the clinic for counts only. We were only in the clinic for 30 minutes before we got to go home today. His ANC was only 200, so we are on lockdown. They want us back in the clinic on Friday to check his counts again to make sure he doesn’t need another blood transfusion. So until Friday we will be at home on lockdown resting and hoping his counts go back up.
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