good news at last

Posted by Mommy

We had good news at last today. We went to the clinic last week Tuesday with CJ’s ANC only at 200 and is hemoglobin a little on the low side, so they had us come back on Friday. Friday his ANC was up to 500 but his hemoglobin down a little more. It was border line on him getting another blood transfusion. They decided they would give him a couple more days and if his hemoglobin didn’t come up he would have to give him another blood transfusion this Monday. We came into the clinic this morning ready for anything. We were thrilled that his ANC is up to 1100, and his hemoglobin is up also. That means maintenance starts next Tuesday! We have to go in early on Tuesday for another sleepy test, and chemo. He will also have to start taking a chemo pill daily and steroids five days a month.

We have been practicing taking pills this week so we can be ready. After talking to the clinic’s therapist about methods on getting kids to take pills, CJ is becoming a pro at it. We started with Nerds candy since they are so small, and then we moved up to mini M&M’s, and finally regular size M&M. He is excited that he won’t have to taste the yucky pills, and wants to be the best pill taker in the whole world. I told him to keep practicing and he could be. We even have Hunter clapping for CJ every time he swallows a piece of candy. I just hope this continues when we get the pills and he has to take steroids at the same time.

We are just so glad that we are out of the scary part of his treatment. We are looking forward to getting back to normal, or at least starting our new normal. For the most part we will only have to go to the clinic once a month. This means preschool will be possible in the near future. Just keep praying for no relapses so the next two years will go by fast.