update

Post by: Mommy


Picture #1 decades day at school

Picture #2 first day of 1st grade



CJ is back to school and doing great. He is making all A’s in school and has lots of friends. His entire class is his friends so the only time he gets in trouble is from talking too much. CJ loves to talk, and likes helping others. He also loves sports, and can keep up with the big kids with no problems. He is also growing like crazy. He is the tallest kid in his class and almost every month we go to the doctor he gets a little taller. I keep telling him he better start practicing basketball, because he is going to be 7 foot tall at the rate he is going. He just tells me he would rather play football. He has decided he wants to be a police officer when he grows up so he can protect people from bad guys. But he still wants to learn to do magic tricks also. We just let him know he can do anything he wants.

As for treatment CJ is doing great. We are on count down mode. We have until May until he is finished with treatment. We spent the day at Kosairs on Tuesday for his routine spinal tap and chemo. His ANC was 1400, right where they want it to be. He still gets a little nervous right before they sedate him, but who wouldn’t at any age. He just doesn’t want me to leave his side, then wakes up within a few minutes after they are finished and is in happy drunk mode telling me how funny I look with four eyes and two heads. He will have two more spinal taps between now and May. It hasn’t sunk in yet that there is an end in sight. I guess I am still in the protector mode. I don’t want to let my guard down or something will happen. One more winter to get through before the end, one more flu season, less than one more year. Then we have to relearn life again. We will have a new normal again as a cancer survivor. He will still be closely watched by doctors. He will still have monthly blood test for the first year, getting further apart over the next 4 years. So it just doesn’t end all at once, but a new normal. Every phase in his treatment is a new normal. We are looking forward to the new normal.