CJ is now home from his latest visit to the clinic. Today's visit was mixed with good and bad. No lumbar punctures, no bone marrow tests, and no accessing his port; but he did have to endure two shots to his thighs - these are the PEG shots and occur only occasionally throughout the treatment plan. All-in-all, it was a fairly short visit and the shots weren't too bad.
His counts however, are down to 900 - under the 1,000 count the doctors prefer. As a result, he is on "lock-down" and can't leave the house. Sheree must also be very cautious to limit his contact with visitors - especially during this flu season. It could be devastating for CJ to be exposed to a serious flu while his counts are so low. I'm sure everyone knows how much CJ loves your visits, but for now, please check with Sheree before "stopping by".
The decline in his ANC to 900 is not unexpected. The doctors advised that this would probably happen as a result of the chemo pill he takes daily. In addition, the PEG shots may cause his counts to drop further. He is due to return to the clinic next Tuesday to begin his next phase of treatment. All will depend though on his ANC. If his counts are below 750 next week they will delay the start of his next phase until his counts come back up.
Otherwise, CJ is in good spirits. He has been dealing with a little nausea, but he isn't a great sport about taking the medicine that will help control it. And it can be very difficult to reason with a 4 year-old.
Sometimes it's hard to believe he is fighting a life-threatening illness. He is so resilient. I am constantly amazed by what this little guy just takes in stride. He is truly our little hero!
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